UNO

Today was the first day Johnny and I played Uno since he was admitted 30 days ago  -- of course I let him win both games.  Once he really starts to feel better, the gloves are coming off -- I will show no mercy! 

The HemOnc team discussed 'thinking about a game plan' when the biopsy results come back, at least 48-72 hours.  Not much has changed since yesterday, we will s-l-o-w-l-y peel off one antibiotic a day or maybe every other day depending how he does and continues to be fever free. Although a prophylactic antibiotic (Cipro) will be added just in case.

Good news about the biopsy is nothing has grown.  Once we find out which fungus or bacteria is/was in his lungs, specific meds will be used.  If he needs both anti fungals the same plan applies; eventually and very, slowly cut back on dosages/meds. Treatment for fungus is long -- possibly months and usually given through IV.  

Today Dr. Shaw very causally said, "Once your HOME, you will have to come back 2-3 times a week for the anti fungals" -- What?  Home?  That hasn't even been close to being on anyone's radar in weeks!  Her goal is more than just making him well enough to go home, but strong enough to go home and skate!  How cool are those doctor's orders?