My parents came up to visit and brought Sophie back (she was at my sister's since last Wed.) to us. It was great to see Nana and Pops -- I think Johnny enjoyed seeing them too.
The doctors gave us a quick update about the latest on Johnny's treatment. Still no bacteria growth on any of the blood cultures! His counts are okay, but he will probably need a transfusion tomorrow, his ANC is still at zero. He has lost 12 lbs. in 12 days, so they will start TPN (nutrition/food through his IV's), and potassium supplements in addition to whatever food he eats.
One IV has been bugging him for the past 3 days, I accidentally touched it yesterday and he screamed and gave me the dirtiest look. I asked him what happened, where did it hurt and of course he denied the whole incident. Peripheral IV's only last a few days, so when one starts to hurt or gets blown, they try to find a stronger vein to access -- and let's just say he's currently running short on veins.
The docs want to put in a PIC line tomorrow to get things rolling. It's this thing that is half in, half out of your arm and has two accesses on the same line. We all knew this was around the corner, PIC lines freak us out big time, but we don't have a choice. The upshot to having a freaky PIC, is Mike will no longer have to call him "Johnny Needle Hands" -- the peripheral IVs will come out and his hands will be free to move about!
Chemo will resume tomorrow as well as some new physical therapy. The PT came down today to assess Johnny and get an idea of what the focus will be. Luckily, the kid is pretty athletic and had good muscle strength to begin with, so they will focus on girth more than anything. I think he will like PT because they have a whole floor dedicated to it and it looks like a big gym. Basketball and everything. I'm just happy he can walk!
The Colombo's stopped by for a visit today too -- it's always nice to see anyone NOT wearing a lab coat!
This is our friend David. That's not his real hair, it was part of his Halloween coustume last year --his Borrat wig. He added the press-on mustache and viola! It's me, Mario!
This is Mike and Johnny watching a video clip that Steve Berra and Eric Koston put together for him. It's an invitation to skate the Berrics (in LA) when he gets better. Jim put an invitation on his website to skate his giant 48' wide ramp in Berkley. More incentive to get the hell outta here as fast as he can. It brightened Johnny's day, lifted his moral and spirit, and inspired him to start drawing again. There are no words to describe how happy it made us to see Johnny smile.
Check out the websites:
DLXSF.com
theberrics.com
9 comments:
Checking in again and just want you to know that you're the subject of ongoing prayers...love you guys...cy
What a cool message on the Berrics site. We can just see Johnny sitting in the back of that VW, hangin' with fellow skaters. Get better soon!
Allen, Jennifer and Ella
Hi Johnny, Julie, & Mike,
This is the first time I have posted on your blog--I always emailed your mom, instead!
I am so glad you are feeling better each day. I saw Tony Hawk on Super Password--or whatever they call it these days--tonight and thought of you. Is he someone you know or is he too old? I'm sure Mom and Dad know who he is!!!
Keep fighting those infections; I know they are no fun. Hope you are "sprung" very soon and are back in the water and on your skateboard ASAP!
Thinking and praying for you,
Eileen
Morning!!! Sounds like you guys had a busy weekend, and busy with friends and family instead of "white coats". Great!!!! We took Zoe out to socialize with Coco and Slater. She taught them as much of her bad manners as time would allow!! Kidding. They had fun being doggie pals. Tell Johnny and Mike they aren't missing any surf. Just windy slops. We need to work on that forecast or maybe the forecaster!! :-) we'll catch up this week!! keep up this awesome progress. Rg
What a trooper and a fighter. Go Johnny Go!!!!! We love you....
Debbie
AKA
Coach Hopkins
get well soon Johnny. I will be praying for you.
Skater from Bangkok, Thailand
Jon.
I checked out the websites and that is so cool!! Tell Johnny that I plan to be there to take pictures (if I can be) when he skates!!
Love,
Aimee
HI Johnny,
We just found out what happened. We miss you at the beach and can't wait to see you skating outside again. We'll come by TCH to visit when you're up to it. Hang tough, we're thinking about you and praying for you.
Michael and Avery (Mom and Dad too)
Stay Strong Johnny,
Sometimes the body needs a little maintenance.
I want to see you at the Berrics pretty soon. The Berrics, can you imagine wow.
Patrick
www.myspace.com/Toopax
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